In my epidemiology class, we did a unit on genetic disorders and disease screening. Genetic disorders are “rare”– at least until they happen to you. Many of us are carrying a gene right now for some type of genetic disorder. But it’s only if the conditions are just right that a baby has a disorder or becomes a carrier. Why? Sometimes it has do … Read More Genetic Disorders: What Are The Odds?
Category: special needs children
“Is your wife one of those people who will go along with it? Just sign him up for the surgery and you can go home and discuss it with her later.” My husband had come to a prominent teaching hospital in Southern California affiliated with the Seventh Day Adventist faith seeking orthotic braces for our son. Instead, he was getting a hard sell for … Read More Bioethics Is Not A Sequel To A Pauly Shore Movie
Yes, I don’t believe it’s entirely your fault that you are struggling with breastfeeding. (That’s not to say that you can’t breastfeed or don’t have any control over it.) I think most of our public health and private programs that aim to help with breastfeeding forget that we live in a very different situation than ever before in human history when it comes to … Read More 6 Reasons Why Breastfeeding Problems Are Not Your Fault
Disclaimer: I did not undergo in-utero surgery for my son’s spina bifida. I have studied this report on the MOMS trial extensively and used it as an example in my biostatistics and public health policy courses during my MPH studies. Parents who receive a prenatal diagnosis for spina bifida are in a unique situation. They have the option of a relatively new procedure for … Read More Making the Decision About Prenatal Surgery For Spina Bifida
Breastfeeding Article: Utilizing the Breastfeeding Pathway Model to Help NICU Mothers and Babies Breastfeed
For my Breastfeeding Educator Certification I had to write an article on a topic related to breastfeeding. I chose to write about breastfeeding in the NICU because of the pressure I felt as I was breastfeeding my oldest during his stay in a Level IV NICU. Breastfeeding in a Neonatal Intensive Care Unit (NICU) can be extremely challenging. Not only does the baby have … Read More Breastfeeding Article: Utilizing the Breastfeeding Pathway Model to Help NICU Mothers and Babies Breastfeed
“…extreme disability is not synonymous with unhappiness and we are only at the beginning of finding ways of developing the capabilities of these patients….”- Dr. Robert Zachary, pioneer of spina bifida care It’s October and among other health causes, it’s Spina Bifida Awareness Month. Yes, I know folic acid. But only about 50% of spina bifida cases can be attriubted to folic acid deficiency. … Read More What I Wish People Were Aware of About Spina Bifida